There is an almost overwhelming amount of information available about hospice, hospice care and palliative care on the web, in books and in periodicals.
We have researched and gathered the following links to make your search for information easier and less time consuming. Each website that we have listed may be viewed free of charge.
We have also included brief summaries for each link so that you may focus your search on your specific areas of interest. Each of these links is an excellent information source that will help you better understand hospice, hospice care, palliative care and other end-of-life issues.
Please don’t forget that we are always available to you at any time to discuss any issues that you either (1) cannot find satisfactory answers for or (2) prefer to discuss in person rather than conduct research on your own.
Hospice Care Information Sources
The American Hospice Foundation: www.americanhospice.org
This site covers the full range of hospice care and includes helpful articles, publications and resources relating to end-of-life issues and hospice care. Excellent information, clearly written, easily read and understood.
On Our Own Terms: www.pbs.org/wnet/onourownterms
This PBS website summarizes the four-part, six-hour series that took Bill Moyers from the bedsides of the dying to the front lines of a movement to improve end-of-life care. The site combines multimedia, online articles and resources for further research. Very well done.
American Academy of Hospice and Palliative Medicine: www.aahpm.org
This site is most helpful for its End-of-Life/Palliative Care Educational Resources link and its “related sites” resources link.
The National Hospice and Palliative Care Organization: www.nhpco.org
The oldest non-profit organization devoted exclusively to hospice care. Use the Hospice and Palliative Care link for an excellent source of information on all aspects of hospice care.
Hospice Net – Death and Dying, Caregiving and Grief: www.hospicenet.org
An outstanding collection of information in one location. In addition to general information about hospice, this site also provides specific information of interest to hospice patients, caregivers and children. The topic of bereavement is also detailed.
Growth House: www.growthhouse.org
An excellent website for professionals and the general public. In their own words, “Growth House, Inc., provides this portal as your international gateway to resources for life-threatening illness and end-of-life care. Our primary mission is to improve the quality of compassionate care for people who are dying through public education and global professional collaboration. Our search engine gives you access to the Internet’s most comprehensive collection of reviewed resources for end-of-life care.”
The “End-of-Life” section covers hospice and palliative care issues, plus information on practical matters such as estate planning, wills and power of attorney. The section on “Grief and Loss” could also be very helpful.
Advance Directives: http://www.caringinfo.org/resources/brochures.htm#advancedirectives
Partnership for Caring provides free state-specific advance directive documents that can be opened as PDF (Portable Document Format) files. The documents include of living wills and/or medical powers of attorney forms with clear instructions for completing them, as well as advice on how to handle the notable points of law. If you have additional questions, they also list their toll free hotline. Note that you should always consult with your own attorney before using forms such as these.
Medical Information Sources
Medline Plus: medlineplus.gov
A comprehensive source of information on medical conditions, diseases, wellness and prescription drugs. The site also includes a medical dictionary and encyclopedia, as well as online interactive tutorials on a variety of medical conditions and diseases.
This site is for those who want to conduct very detailed research on medical conditions and diseases. PubMed, a service of the National Library of Medicine, includes over 15 million citations for biomedical articles back to the 1950’s. These citations are from MEDLINE and additional life science journals. PubMed also includes links to many sites providing full text articles and other related resources.
This website of the National Cancer Institute is an excellent source of information for your questions regarding cancer.
Pandemic Information & News: www.pandemicinfosite.com/
This web site provides concise and straight forward information and news about the potential dangers of pandemic flu, also known as avian flu or swine flu, and what you must do now to inform and protect yourself, your family or business.
Bereavement Information Sources
Hospice Net-Bereavement: www.hospicenet.org/html/bereavement.html
Hospice Net is also listed above as a hospice care resource, but we list it here again because its section on bereavement is excellent.
New York Life Foundation: www.newyorklifefoundation.org
Humanity, along with financial strength and integrity, are the core values upon which New York Life Insurance Company was founded. We believe our obligation to be there for people when they need us extends beyond our day-to-day business. We are equally committed to serving the communities where our employees and agents live and work – it demonstrates who we are as a Company. New York Life strives to be the “Company of the Community,” through the efforts of the Corporate Responsibility Unit and the Foundation.
GriefNet.org is an Internet community of persons dealing with grief, death, and major loss. It consists of a number of email support groups and two web sites. GriefNet’s integrated approach to on-line grief support provides help to people working through loss and grief issues. Its companion site, KIDSAID, provides a safe environment for children and parents to find information and ask questions.
Cars 4 Charities: www.cars4charities.org
Cars4Charities is a truly unique, not-for-profit, car donation center. When you donate car, truck, van or SUV to our car donation center, we'll send the entire net proceeds to the charity you select from our extensive list.